He's Not Scary,He's A Little Boy 3.

JPDM

ABR (Auditory Brainstem Response) Test

After an 8 long months of trying to get an ABR scheduled, Jameson finally had his appointment today.  What they say is true, you really gotta keep fighting for these kids because no one else is going to.  All of the doctors have been great, don’t get me wrong, but when one little mistake happens in the system with referrals the process has to start all over again, and if you don’t initiate the process no one else will.
What we have known for quite some time has finally been confirmed – Jameson has moderate hearing loss in both ears, the left is a little worse than the right.  He has trouble picking up low and middle tones in his right ear and does okay with the high ones, and in his left he has trouble with the low and high tones, and picks up just a little of the mid-tones.  The doctor did say his hearing loss is conductive, which is common with these kids.  So, hearing aids are next!

And yes, I am excited about this!  I have high hopes that with some assistance Jameson’s brain will start to clearly hear the world around him.  He communicates with signs and gestures, and clearly knows what is going on around him, and with added sound his world will just brighten!  And since we have already been doing speech therapy I really hope he becomes a chatterbox!
We started off in a great mood :)
We started off in a great mood :)
Then had fun with the nurse call button )
Then had fun with the nurse call button )
And then had a TT when I took it away :)
And then had a TT when I took it away :)
Back home - still loopy and heavy headed from the sedation
Back home – still loopy and heavy headed from the sedation

The Book Is Here! And I’m officially a horrible blogger.

/ 1 Comment
Jimmy Pfeiffer Dragonmeyer is officially published, I made a page and wrote a small blurb about it here.  I live across the country from my mom, so I am super excited that she will be here in less than a month to help with the new arrival, because I can get a picture of her reading the book that she wrote to Jameson!
Yes, I am a horrible blogger, but that is a great thing because it means that Jameson is doing his thing and nothing major has happened.  Really, I would love to update this blog and share all the wonderful stories and pictures of Jameson but life is crazy and hectic.  I went back to school last spring for my Master’s, still work full-time, have 2 wild boys (4 if you include the husband and the dog ;) ), and am expecting boy #3 in less than a month – so that’s the REAL reason why, lol.
But Jameson is doing what any almost 2 year-old does;  for the most part.  He still doesn’t “speak”, otherwise, he plays, fights, and gets into trouble all day long.  His hearing isn’t so much affecting his ability to speak, but his anatomy and mouth structure.  His recessed cheek bones affect his pallate, there is less room in his mouth and his pallate is higher, which makes him stick his tongue out.  We recently added tongue strengthing exercises to help develop the movement.  We see a speech therapist once a week and he not only adores her, but has learned to communicate with us by signing.  It was a slow start getting him to sign, he would generally point and make a grunt type noise when he wanted something, but eventually he has gotten better and better.  We started with a few basic words, eat, drink, help, and more.  Eat was the first thing he signed, along with an “eee”sound.  I can’t even tell you how excting that was!!  It’s amazing to “hear” your child talk without words!  Next he started signing more, and then he morphed more/eat into a simutaneous gesture when he wanted to eat period.  He also picked up the sign for help pretty quickly.  The most exciting thing was a few weeks ago when he basically signed an entire sentence together – “I want to eat more banana” – every word was clear and deliberate, well, except for banana because we hadn’t learned that yet, it was just an index finger pointing to the empty peel.  It was so darn cute, I wish I had it on tape!  Since then we have integrated many new signs, mainly food items :)  Banana he does already (it’s his favorite food), and it’s pretty cute too – the sign literally gestures like your peeling a banana – Jamesons interpretation is rolling his fists like in the “Roll It” part of Patty-Cake.
Signing and communication have been the focus for the last few months with Jameson.  We are getting ready for a sleep study, and pending good results, his next MRI won’t be until December.  Still struggling to get his ABR done – it’s not our insurance, but the local hospital here, and it makes me even more glad that we decided to go to Dallas for his craniofacial care – getting anything done through this hospital is a nghtmare!  Ironically, Dr. Fearon said we could do the sleep study this month close to home and fax the results to him so we wouldn’t have to bother with a 3 hour drive- little does he know it is easier in the long run just to drive to Dallas!
Here are some pictures of our summer- Jameson loves cheesin for the camera now, lol.
cheesin
Cheese Face!
Wells Beach, ME
Wells Beach, ME
Tampa Aquarium
Tampa Aquarium
He loves bubbles!
He loves bubbles!
 jamesonsjourney.



Popular posts from this blog

UK GENERAL ELECTIONS:Inquiry announced into memo alleging Sturgeon wants Tory election victory.

Image
Civil service instigates investigation into leaked memo from Foreign Office about supposed comments made in February Scotland’s first minister, Nicola Sturgeon, with David Cameron in her office at the Scottish parliament earlier this year. Photograph: WPA Pool/Getty A civil service inquiry into a leaked memo which claimed that Nicola Sturgeon privately wanted to see David Cameron remain in power after the general election has been instigated following calls from the First Minister. Ms Sturgeon described the allegation as “100% untrue” and accused Whitehall of “dirty tricks”.
Read more

Sandhurst's sheikhs: Why do so many Gulf royals receive military training in the UK? A parade outside the building at Sandhurst Continue reading the main story In today's Magazine The death list that names 5,000 victims Is this woman an apostate? Voices from a WW1 prison camp The Swiss selfie scandal Generations of foreign royals - particularly from the Middle East - have learned to be military leaders at the UK's Sandhurst officer training academy. But is that still a good idea, asks Matthew Teller. Since 1812, the Royal Military Academy Sandhurst, on the Surrey/Berkshire border, has been where the British Army trains its officers. It has a gruelling 44-week course testing the physical and intellectual skills of officer cadets and imbuing them with the values of the British Army. Alongside would-be British officers, Sandhurst has a tradition of drawing cadets from overseas. Many of the elite families of the Middle East have sent their sons and daughters. Perhaps the most notable was King Hussein of Jordan. Continue reading the main story Find out more Matthew Teller presents Sandhurst and the Sheikhs, a Whistledown production for BBC Radio 4, on Wednesday 27 August 2014 at 11:00 BST It will be available on iPlayer shortly after broadcast Four reigning Arab monarchs are graduates of Sandhurst and its affiliated colleges - King Abdullah of Jordan, King Hamad of Bahrain, Sheikh Tamim, Emir of Qatar, and Sultan Qaboos of Oman. Past monarchs include Sheikh Saad, Emir of Kuwait, and Sheikh Hamad, Emir of Qatar. Sandhurst's links have continued from the time when Britain was the major colonial power in the Gulf. "One thing the British were excellent at was consolidating their rule through spectacle," says Habiba Hamid, former foreign policy strategist to the rulers of Dubai and Abu Dhabi. "Pomp, ceremony, displays of military might, shock and awe - they all originate from the British military relationship." Sheikh Hamad Bin Isa Al Khalifa, King Abdullah, Sultan Qaboos Sandhurst alumni: King Hamad of Bahrain, King Abdullah of Jordan and Sultan Qaboos of Oman It's a place where future leaders get to know each other, says Michael Stephens, deputy director of the Royal United Services Institute, Qatar. And Sandhurst gives the UK influence in the Gulf. "The [UK] gets the kind of attention from Gulf policy elites that countries of our size, like France and others, don't get. It gives us the ability to punch above our weight. "You have people who've spent time in Britain, they have… connections to their mates, their teachers. Familiarity in politics is very beneficial in the Gulf context." "For British people who are drifting around the world, as I did as a soldier," says Brigadier Peter Sincock, former defence attache to Saudi Arabia, "you find people who were at Sandhurst and you have an immediate rapport. I think that's very helpful, for example, in the field of military sales." The Emir of Dubai Mohammad bin Rashid Al Maktoum with his son after his Passing Out Parade at Sandhurst in 2006 Sheikh Mohammad bin Rashid Al Maktoum, Emir of Dubai, with his son in uniform at Sandhurst in 2006 Her Majesty The Queen's Representative His Highness Sheikh Hamad bin Khalifa Al-Thani, The Emir of Qatar inspects soldiers during the 144th Sovereign's Parade held at The Royal Military Academy Sandhurst on April 8, 2004 in Camberley, England. Some 470 Officer cadets took part of which 219 were commissioned into the British Army Hamad bin Khalifa Al-Thani, the Emir of Qatar until 2013, inspects soldiers at Sandhurst in 2004 Emotion doesn't always deliver. In 2013, despite the personal intervention of David Cameron, the UAE decided against buying the UK's Typhoon fighter jets. But elsewhere fellow feeling is paying dividends. "The Gulf monarchies have become important sources of capital," says Jane Kinninmont, deputy head of the Middle East/North Africa programme at the foreign affairs think tank Chatham House. "So you see the tallest building in London being financed by the Qataris, you see UK infrastructure and oilfield development being financed by the UAE. There's a desire - it can even seem like a desperation - to keep them onside for trade reasons." British policy in the Gulf is primarily "mercantile", says Dr Kristian Coates Ulrichsen, of the Baker Institute in Houston, Texas. Concerns over human rights and reform are secondary. The Shard at dusk The Shard was funded by Qatari investors In 2012 Sandhurst accepted a £15m donation from the UAE for a new accommodation block, named the Zayed Building after that country's founding ruler. In March 2013, Sandhurst's Mons Hall - a sports centre - was reopened as the King Hamad Hall, following a £3m donation from the monarch of Bahrain, who was educated at one of Sandhurst's affiliated colleges. The renaming proved controversial, partly because of the perceived slight towards the 1,600 British casualties at the Battle of Mons in August 1914 - and partly because of how Hamad and his government have dealt with political protest in Bahrain over the last three years. A critic might note that the third term of Sandhurst's Officer Commissioning Course covers counter-insurgency techniques and ways to manage public disorder. Since tension between Bahrain's majority Shia population and minority Sunni ruling elite boiled over in 2011, more than 80 civilians have died at the hands of the security forces, according to opposition estimates, though the government disputes the figures. Thirteen police officers have also lost their lives in the clashes. "The king has always felt that Sandhurst was a great place," says Sincock, chairman of the Bahrain Society, which promotes friendship between the UK and Bahrain. "Something like 20 of his immediate family have been there as cadets. He didn't really understand why there was such an outcry." David Cameron and King Hamad David Cameron meeting King Hamad in 2012... A protester is held back by police ... while protesters nearby opposed the Bahrain ruler's human rights record Crispin Black, a Sandhurst graduate and former instructor, says the academy should not have taken the money. "Everywhere you look there's a memorial to something, a building or a plaque that serves as a touchstone that takes you right to the heart of British military history. Calling this hall 'King Hamad Hall' ain't gonna do that." Sandhurst gave a written response to the criticism. "All donations to Sandhurst are in compliance with the UK's domestic and international legal obligations and our values as a nation. Over the years donations like this have saved the UK taxpayer a considerable amount of money." But what happens when Sandhurst's friends become enemies? In 2001, then-prime minister Tony Blair visited Damascus, marking a warming of relations between the UK and Syria. Shortly after, in 2003, Sandhurst was training officers from the Syrian armed forces. Now, of course, Syria is an international pariah. Journalist Michael Cockerell has written about Libyan dictator Colonel Gaddafi's time at the Army School of Education in Beaconsfield in 1966: "Three years [later], Gaddafi followed a tradition of foreign officers trained by the British Army. He made use of his newfound knowledge to seize political power in his own country." Ahmed Ali Sandhurst-trained Ahmed Ali was a key player in the Egyptian military's removal of Islamist President Mohammed Morsi That tradition persists. In the 1990s Egyptian colonel Ahmed Ali attended Sandhurst. In 2013 he was one of the key figures in the Egyptian military's removal of Islamist President Mohammed Morsi, now rewarded by a post in President Sisi's inner circle of advisers. In the late 1990s there were moves by the British government under Tony Blair to end Sandhurst's training of overseas cadets. Major-General Arthur Denaro, Middle East adviser to the defence secretary and commandant at Sandhurst in the late 1990s, describes the idea as part of the "ethical foreign policy" advocated by the late Robin Cook, then-foreign secretary. Tony Blair and Robin Cook Tony Blair and Robin Cook at one point planned to end Sandhurst's training of overseas cadets The funeral of King Hussein in 1999 appears to have scuppered the plan. "Coming to that funeral were the heads of state of almost every country in the world - and our prime minister was there, Tony Blair," says Major-General Denaro. "He happened to see me talking to heads of state - the Sultan of Brunei, the Sultan of Oman, the Bahrainis, the Saudis - and he said 'How do you know all these guys?' The answer was because they went to Sandhurst." Today, Sandhurst has reportedly trained more officer cadets from the UAE than from any other country bar the UK. The May 2014 intake included 72 overseas cadets, around 40% of whom were from the Middle East. "In the future," says Maryam al-Khawaja, acting president of the Bahrain Centre for Human Rights, "people will look back at how much Britain messed up in the [Middle East] because they wanted to sell more Typhoon jets to Bahrain, rather than stand behind the values of human rights and democracy." "It's one thing saying we're inculcating benign values, but that's not happening," says Habiba Hamid. Sandhurst is "a relic of the colonial past. They're not [teaching] the civic values we ought to find in democratically elected leaders." line Who else went to Sandhurst? Princes William and Harry, Winston Churchill, Ian Fleming, Katie Hopkins, Antony Beevor, James Blunt, Josh Lewsey, Devon Harris (From left to right) Princes William and Harry Sir Winston Churchill Ian Fleming, creator of James Bond (but did not complete training) Katie Hopkins, reality TV star Antony Beevor, historian James Blunt, singer-songwriter Josh Lewsey, World Cup-winning England rugby player Devon Harris, member of Jamaica's first bobsleigh team line Sandhurst says that "building international relations through military exchanges and education is a key pillar of the UK's international engagement strategy". Sandhurst may be marvellous for the UK, a country where the army is subservient to government, but it is also delivering militarily-trained officers to Middle Eastern monarchies where, often, armies seem to exist to defend not the nation but the ruling family.

Image
Generations of foreign royals - particularly from the Middle East - have learned to be military leaders at the UK's Sandhurst officer training academy. But is that still a good idea, asks Matthew Teller. Since 1812, the Royal Military Academy Sandhurst, on the Surrey/Berkshire border, has been where the British Army trains its officers. It has a gruelling 44-week course testing the physical and intellectual skills of officer cadets and imbuing them with the values of the British Army. Alongside would-be British officers, Sandhurst has a tradition of drawing cadets from overseas. Many of the elite families of the Middle East have sent their sons and daughters. Perhaps the most notable was King Hussein of Jordan. Four reigning Arab monarchs are graduates of Sandhurst and its affiliated colleges - King Abdullah of Jordan, King Hamad of Bahrain, Sheikh Tamim, Emir of Qatar, and Sultan Qaboos of Oman. Past monarchs include Sheikh S
Read more

Ebola Outbreak: Guinea Declares Emergency As Overall Deaths From Ebola Rise To 1,069

Image
Health workers take passengers' temperatures infrared digital laser thermometers at the Felix Houphouet Boigny international airport in Abidjan on Aug. 13, 2014. Ivory Coast on Monday banned air travellers from Guinea, Liberia and Sierra Leone, the three countries worst-hit by the Ebola outbreak, and ordered its flagship carrier Air Cote d'Ivoire to cease flights to and from them. Reuters/Luc Gnago Guinea, one of the worst-hit West African nations in the ongoing Ebola outbreak, announced a state of emergency Wednesday. The World Health Organization, or WHO, also  said  that four new people died in Guinea between Aug. 10 and Aug. 11. The total death count in Guinea from the latest epidemic was estimated at 377 by WHO while the number of cases reported had risen to 510. Overa
Read more