He's Not Scary,He's A Little Boy 3.
ABR (Auditory Brainstem Response) Test
After an 8 long months of trying to get an ABR scheduled, Jameson
finally had his appointment today. What they say is true, you really
gotta keep fighting for these kids because no one else is going to. All
of the doctors have been great, don’t get me wrong, but when one little
mistake happens in the system with referrals the process has to start
all over again, and if you don’t initiate the process no one else will.
What we have known for quite some time has finally been confirmed – Jameson has moderate hearing loss in both ears, the left is a little worse than the right. He has trouble picking up low and middle tones in his right ear and does okay with the high ones, and in his left he has trouble with the low and high tones, and picks up just a little of the mid-tones. The doctor did say his hearing loss is conductive, which is common with these kids. So, hearing aids are next!
And yes, I am excited about this! I have high hopes that with some assistance Jameson’s brain will start to clearly hear the world around him. He communicates with signs and gestures, and clearly knows what is going on around him, and with added sound his world will just brighten! And since we have already been doing speech therapy I really hope he becomes a chatterbox!
What we have known for quite some time has finally been confirmed – Jameson has moderate hearing loss in both ears, the left is a little worse than the right. He has trouble picking up low and middle tones in his right ear and does okay with the high ones, and in his left he has trouble with the low and high tones, and picks up just a little of the mid-tones. The doctor did say his hearing loss is conductive, which is common with these kids. So, hearing aids are next!
And yes, I am excited about this! I have high hopes that with some assistance Jameson’s brain will start to clearly hear the world around him. He communicates with signs and gestures, and clearly knows what is going on around him, and with added sound his world will just brighten! And since we have already been doing speech therapy I really hope he becomes a chatterbox!
We started off in a great mood :)
Then had fun with the nurse call button )
And then had a TT when I took it away :)
Back home – still loopy and heavy headed from the sedation
The Book Is Here! And I’m officially a horrible blogger.
Jimmy Pfeiffer Dragonmeyer is officially published, I made a page and wrote a small blurb about it here.
I live across the country from my mom, so I am super excited that she
will be here in less than a month to help with the new arrival, because I
can get a picture of her reading the book that she wrote to Jameson!
Yes, I am a horrible blogger, but that is a great thing because it means that Jameson is doing his thing and nothing major has happened. Really, I would love to update this blog and share all the wonderful stories and pictures of Jameson but life is crazy and hectic. I went back to school last spring for my Master’s, still work full-time, have 2 wild boys (4 if you include the husband and the dog ;) ), and am expecting boy #3 in less than a month – so that’s the REAL reason why, lol.
But Jameson is doing what any almost 2 year-old does; for the most part. He still doesn’t “speak”, otherwise, he plays, fights, and gets into trouble all day long. His hearing isn’t so much affecting his ability to speak, but his anatomy and mouth structure. His recessed cheek bones affect his pallate, there is less room in his mouth and his pallate is higher, which makes him stick his tongue out. We recently added tongue strengthing exercises to help develop the movement. We see a speech therapist once a week and he not only adores her, but has learned to communicate with us by signing. It was a slow start getting him to sign, he would generally point and make a grunt type noise when he wanted something, but eventually he has gotten better and better. We started with a few basic words, eat, drink, help, and more. Eat was the first thing he signed, along with an “eee”sound. I can’t even tell you how excting that was!! It’s amazing to “hear” your child talk without words! Next he started signing more, and then he morphed more/eat into a simutaneous gesture when he wanted to eat period. He also picked up the sign for help pretty quickly. The most exciting thing was a few weeks ago when he basically signed an entire sentence together – “I want to eat more banana” – every word was clear and deliberate, well, except for banana because we hadn’t learned that yet, it was just an index finger pointing to the empty peel. It was so darn cute, I wish I had it on tape! Since then we have integrated many new signs, mainly food items :) Banana he does already (it’s his favorite food), and it’s pretty cute too – the sign literally gestures like your peeling a banana – Jamesons interpretation is rolling his fists like in the “Roll It” part of Patty-Cake.
Signing and communication have been the focus for the last few months with Jameson. We are getting ready for a sleep study, and pending good results, his next MRI won’t be until December. Still struggling to get his ABR done – it’s not our insurance, but the local hospital here, and it makes me even more glad that we decided to go to Dallas for his craniofacial care – getting anything done through this hospital is a nghtmare! Ironically, Dr. Fearon said we could do the sleep study this month close to home and fax the results to him so we wouldn’t have to bother with a 3 hour drive- little does he know it is easier in the long run just to drive to Dallas!
Here are some pictures of our summer- Jameson loves cheesin for the camera now, lol.
jamesonsjourney.
Yes, I am a horrible blogger, but that is a great thing because it means that Jameson is doing his thing and nothing major has happened. Really, I would love to update this blog and share all the wonderful stories and pictures of Jameson but life is crazy and hectic. I went back to school last spring for my Master’s, still work full-time, have 2 wild boys (4 if you include the husband and the dog ;) ), and am expecting boy #3 in less than a month – so that’s the REAL reason why, lol.
But Jameson is doing what any almost 2 year-old does; for the most part. He still doesn’t “speak”, otherwise, he plays, fights, and gets into trouble all day long. His hearing isn’t so much affecting his ability to speak, but his anatomy and mouth structure. His recessed cheek bones affect his pallate, there is less room in his mouth and his pallate is higher, which makes him stick his tongue out. We recently added tongue strengthing exercises to help develop the movement. We see a speech therapist once a week and he not only adores her, but has learned to communicate with us by signing. It was a slow start getting him to sign, he would generally point and make a grunt type noise when he wanted something, but eventually he has gotten better and better. We started with a few basic words, eat, drink, help, and more. Eat was the first thing he signed, along with an “eee”sound. I can’t even tell you how excting that was!! It’s amazing to “hear” your child talk without words! Next he started signing more, and then he morphed more/eat into a simutaneous gesture when he wanted to eat period. He also picked up the sign for help pretty quickly. The most exciting thing was a few weeks ago when he basically signed an entire sentence together – “I want to eat more banana” – every word was clear and deliberate, well, except for banana because we hadn’t learned that yet, it was just an index finger pointing to the empty peel. It was so darn cute, I wish I had it on tape! Since then we have integrated many new signs, mainly food items :) Banana he does already (it’s his favorite food), and it’s pretty cute too – the sign literally gestures like your peeling a banana – Jamesons interpretation is rolling his fists like in the “Roll It” part of Patty-Cake.
Signing and communication have been the focus for the last few months with Jameson. We are getting ready for a sleep study, and pending good results, his next MRI won’t be until December. Still struggling to get his ABR done – it’s not our insurance, but the local hospital here, and it makes me even more glad that we decided to go to Dallas for his craniofacial care – getting anything done through this hospital is a nghtmare! Ironically, Dr. Fearon said we could do the sleep study this month close to home and fax the results to him so we wouldn’t have to bother with a 3 hour drive- little does he know it is easier in the long run just to drive to Dallas!
Here are some pictures of our summer- Jameson loves cheesin for the camera now, lol.
Cheese Face!
Wells Beach, ME
Tampa Aquarium
He loves bubbles!
